Once you learn that your child has a health problem or disability that could affect learning, the usual schooling guides are not enough. Your child’s milestones will be different, and he or she might need more help to reach them. That’s why experts advise that parents of children with special needs get an educational assessment as early as possible. This will help get the proper supports in place to help your child reach his or her full potential.
Here’s a guide to navigating the education system if your child has special needs.
As soon as you think that your child might be missing important developmental milestones, or if your pediatrician raises a red flag, don’t wait. Your pediatrician can refer you to a local early intervention program for infants, toddlers, and preschoolers. In many cases, the earlier a delay is identified, the more options there are for treatment.
Sometimes, learning disabilities are not caught until later in a child’s development, such as the teen years. Even then, it’s never too late to get your child the services needed to improve and succeed in school. If this is the case, talk with teachers, the principal, or a school counselor or school psychologist about setting up an evaluation to determine your child’s educational needs.
Support for Babies & Toddlers: Stimulation Programs
After evaluation, your baby or toddler might be referred for early intervention programs that include physical therapy, speech therapy, and occupational therapy. These services can help your child work on goals related to developmental milestones like rolling over, feeding himself or herself, and saying a first word. These services usually are delivered by therapists who come to your home.
Support for Preschoolers: Early Intervention
After age 3, children receive most services outside the home and in preschools or other educational centers run by the local school district. Kids continue to get the services detailed in their evaluation report. They’re also exposed to a typical preschool curriculum, such as reading and language development, early math concepts, art, and music, and will benefit from peer and adult interaction.
Many preschool programs for kids with special needs have opportunities for parents to make connections with other families through support groups or other programs.
Support for School-Age Kids
When your child enters kindergarten, he or she will be re-evaluated to see where educational needs lie. The resulting report is called an Evaluation Report (or Re-Evaluation Report) and it will serve as a guide for your child’s academic future.
This report looks at a child’s strengths and needs and checks for learning disabilities that may include attention deficit hyperactivity disorder (ADHD); emotional disorders; cognitive challenges; autism; developmental delays; and hearing, vision, or speech and language impairment.
Recommendations from the evaluation team are used to develop a 504 education plan and/or an individualized education program (IEP):
- 504 plans. These education plans help ensure that students can be educated in regular classrooms alongside their peers, but with the addition of services, accommodations, or educational aids that they might need. Examples of this include preferential seating; extended time on tests and assignments; reduced homework or class work; and verbal, visual, or technology aids.
- The 504 planning team usually includes parents, the principal, classroom teachers, and other school personnel (such as the school nurse, guidance counselor, psychologist, or social worker). If these accommodations don’t help students achieve satisfactory academic success, as determined by the school, then alternative settings in the school or private or residential programs can be considered.
- An individualized education program includes goals, objectives, and specially designed instruction for a child, including yearly planning and progress assessments. It establishes a child’s current academic level, creates realistic annual goals, and forms a plan for how the school district will help the child achieve them.
- The IEP planning team must include parents and a certified teacher and also can include a vision specialist, hearing specialist, physical therapist, occupational therapist, speech therapist, social worker, and other professionals. For example, a child with a learning disability might remain in a mainstream classroom environment while receiving one-on-one tutoring with a reading specialist. A child with cerebral palsy or other physical disability might receive physical therapy, occupational therapy, and/or speech therapy as part of the learning program.
- Students with needs that go beyond what the school district can provide through local or district programs might be referred for placement in a specialized school or program. Students who have an IEP and are receiving special education services are entitled to remain in school through the school year that they turn 21.
These educational plans might seem similar, but they are different. The main difference is that a 504 plan modifies a student’s regular education program in a regular classroom setting, whereas an IEP usually outlines educational services in a special educational setting, depending on a student’s need.
Support for Teens
At age 14, your child will be evaluated to see what he or she needs to transition to adult life. This is called “transition planning.” Transition planning focuses on what your teen wants to do after graduation — such as continuing education, working or volunteering, and recreational activities — and the skills needed to reach those goals.
The transition plan also includes where a young adult might live, whether he or she will need help with activities of daily living (ADLs) (such as eating, bathing, and dressing) and how that support will be provided. It addresses life-skills education (like money management, job seeking, and living independently) and sets a plan for transitioning to adult health care services.
As a parent, you are part of the planning team and should be closely involved in this evaluation and ongoing planning with and for your teen.
Support for Parents
Your child’s educational journey will be unique. It may sometimes feel like an overwhelming process. Remember that you do not need to go through it alone. It’s important to find support. School and community resources are available to tap into along the way — including other parents who have been through it before you. Support groups for families of children with special needs are a great place to meet others with similar challenges and learn from them.
The end goal for everyone is for your child to grow into a happy, productive adult who achieves his or her full potential.